Comments on: Radio Interview for Retinoblastoma Awareness Week is Off http://retinoblastomafocus.com/blog/radio-interview-for-retinoblastoma-awareness-week-is-off/ Dealing with Retinoblastoma Tue, 06 Jan 2009 03:38:30 +0000 http://wordpress.org/?v=2.6.5 By: James Spangler, OD http://retinoblastomafocus.com/blog/radio-interview-for-retinoblastoma-awareness-week-is-off/#comment-12860 James Spangler, OD Fri, 05 Oct 2007 01:26:27 +0000 http://retinoblastomafocus.com/blog/radio-interview-for-retinoblastoma-awareness-week-is-off/#comment-12860 Hi Janet. Sorry I did not notice your reply sooner. InfantSEE is growing daily - our office sees about a baby a day! More offices are becoming more visible in offering this no-charge assessment for babies. We (InfantSEE) have now been added as a resource for primary vision care services (identifying the tumor) to the Retinoblastoma International website (www.retinoblastoma.net). We would love to see efforts work in harmony for better results. Jim Hi Janet. Sorry I did not notice your reply sooner. InfantSEE is growing daily - our office sees about a baby a day! More offices are becoming more visible in offering this no-charge assessment for babies. We (InfantSEE) have now been added as a resource for primary vision care services (identifying the tumor) to the Retinoblastoma International website (www.retinoblastoma.net). We would love to see efforts work in harmony for better results.

Jim

]]> By: janet http://retinoblastomafocus.com/blog/radio-interview-for-retinoblastoma-awareness-week-is-off/#comment-12714 janet Fri, 10 Aug 2007 02:45:47 +0000 http://retinoblastomafocus.com/blog/radio-interview-for-retinoblastoma-awareness-week-is-off/#comment-12714 Hi Jim, Sorry for the delay in responding. I've recently changed my setup and hadn't been notified that a comment was awaiting approval. The project you outlined is very exciting and encouraging. And has proved the need for such a service already by a RB tumour being found in the first infant examined. I'd love to know more about what you do so that I can write a blog about it. Thanks for your comment. Janet Hi Jim,
Sorry for the delay in responding. I’ve recently changed my setup and hadn’t been notified that a comment was awaiting approval.
The project you outlined is very exciting and encouraging. And has proved the need for such a service already by a RB tumour being found in the first infant examined. I’d love to know more about what you do so that I can write a blog about it.
Thanks for your comment.
Janet

]]> By: James Spangler, OD http://retinoblastomafocus.com/blog/radio-interview-for-retinoblastoma-awareness-week-is-off/#comment-12687 James Spangler, OD Tue, 07 Aug 2007 16:07:18 +0000 http://retinoblastomafocus.com/blog/radio-interview-for-retinoblastoma-awareness-week-is-off/#comment-12687 Janet- This is an attempt to send you a message to tell you about an effort by the American Optometric Association to try to change the mindset on the need for early, comprehensive eye and vision care for children, beginning with the infant. Our public health program, InfantSEE,offers a full comprehensive vision assessment of any child in the U.S. at no charge. We have over 7500 optometrists in the AOA offering this service. Included in this assessment is a highly recommended dilated fundus examination. Although we look for a myriad of vision problems, the dilated fundus exam and attention to RB is a very important part of our program. One of our doctors in Arizona found a retinoblastoma tumor on his first InfantSEE assessment. As your blogs have indicated, there has been resistance to our program as searching for a disease too rare to warrant merit. We disagree. Our opinion is that there are many eye and vision issues that justify the need for the InfantSEE assessment, and although rare, we believe the devastating effects of RB justify us to include the dilated fundus exam and close attention to the health of the retina. Please feel free to contact me if you want to learn more about our efforts via the InfantSEE program, or visit www.infantsee.org. Jim James Spangler, OD InfantSEE Committee Member, AOA 213 West Third Avenue Warren, PA 16365 Janet-

This is an attempt to send you a message to tell you about an effort by the American Optometric Association to try to change the mindset on the need for early, comprehensive eye and vision care for children, beginning with the infant. Our public health program, InfantSEE,offers a full comprehensive vision assessment of any child in the U.S. at no charge. We have over 7500 optometrists in the AOA offering this service. Included in this assessment is a highly recommended dilated fundus examination.

Although we look for a myriad of vision problems, the dilated fundus exam and attention to RB is a very important part of our program. One of our doctors in Arizona found a retinoblastoma tumor on his first InfantSEE assessment.

As your blogs have indicated, there has been resistance to our program as searching for a disease too rare to warrant merit. We disagree. Our opinion is that there are many eye and vision issues that justify the need for the InfantSEE assessment, and although rare, we believe the devastating effects of RB justify us to include the dilated fundus exam and close attention to the health of the retina.

Please feel free to contact me if you want to learn more about our efforts via the InfantSEE program, or visit http://www.infantsee.org.

Jim

James Spangler, OD
InfantSEE Committee Member, AOA
213 West Third Avenue
Warren, PA 16365

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