Archive for the ‘Eye loss’ Category


What is the red door?

I promised I’d give an outline of each chapter in the book, so let’s continue.
You find out about the red door in chapter three of ‘Beyond the Red Door’.
I met the red door when I was about eight years old. I’d just been transferred to a school for the blind to learn braille, because the doctors thought I’d go blind very early on in my life. The first thing I saw at the school was this red door. It spoke of a warning to me, indicated somehow that the route I wanted to take in life was barred. It was a challenge.
And I took up the challenge. That’s where the rebel in me came out, where I learned to stand up for myself and maintain my identity. I wasn’t about to change who I was and no-one could tell me otherwise.
It was during this time that I discovered that I could only see out of one eye. Before that, nothing had fazed me. But realising that half my world was ‘missing’ came as a huge shock. Why did this happen? Purely because I was at this school and had been told that I was there because I couldn’t see very well, that I was legally blind.
It’s one of those sad ‘we know best’ stories that are dotted throughout history, the well-meaning experts who actually can cause more harm than good. As a child, I could only do what was within my powers to survive. What lay ahead was beyond my control.


An adopted child born with a rare eye cancer

Imagine the array of emotions parents go through when their baby is diagnosed with cancer. Now add to that the fact that their child is adopted, and that this condition is genetic.
IN the first chapter of ‘Beyond the Red Door’, I focus on the time when my cancer was diagnosed. Of course I have no memory of what went on, but my parents certainly did. For them, it was a harrowing time, watching me undergo intensive radiotherapy, waiting to see if the tumours would shrink, wondering if I would live. Amongst all this, they wondered if my natural parents should be told. I was their child, after all – the child of my natural parents – and they had a right to know. My parents have always had a high regard for the parents who gave me life; they’ve never been scared of losing me.
In the rest of the chapter, I reveal my memories of the many trips to hospital to check on the tumours, to make sure they didn’t come back. And this went on for five years, years I have strong memories about.
But even when I am given the all clear, more is yet to come.
Stay tuned for chapter two.


Losing an Eye

Today I read a post in Paul and Jenny Geelen’s blogg  that addressed the huge issue of choosing to have an eye removed, and the emotional impact this has on the person concerned.

The reference was to an older person with cancer in her eye. I’ve had the experience of having to have an eye removed without choice being involved, and choosing to have an eye removed. The first case was when my cancer was diagnosed as a baby. The second was when my other eye collapsed when I was an adult.

Whereas my parents would say that witnessing me lose an eye as a baby was the worst thing they could have imagined, for me, the decision to have an eye removed as an adult was the hardest one I’ve ever had to face. There was no support for me, no one to ask what it would be like, what I could expect. I tried hard to prepare myself for the operation, but as I was wheeled into theatre, I became an emotional wreck.

People who are going through a similar experience need to be able to speak to others who have gone through the surgery. Support is essential. People need information so that there is no fear of the unknown.

I’ve written about both these experiences in my book, ‘Beyond the Red Door’. I’d like to see other books that have stories of these experiences that can be shared by people who are about to lose an eye. 


« Previous Page