I had an email recently from Lisa, a mother of alittle boy with bilateral retinoblastoma. The family live in Melbourne, Australia, and are part of a support group for parents whose children have RB.
The support group is called, ‘Beyond Sight’. I was really pleased to hear of such a group, as I recall searching for groups like this years ago when I wanted to know more about RB in Australia. Nothing existed then, but obviously this has changed.
Lisa is organising a huge fund-raising and public awareness event in April. After the trauma her family has been through with a shock diagnosis for her son at age twelve weeks, and subsequent lengthy treatments, she says she wants to give back to the support the group has given her.
Lisa has read my book, ‘Beyond the Red Door’. She asked me if I’d donate a copy to be raffled at the event. I am only too happy to do that. She hoped I might be able to come to the event and speak about my experiences. I am going to Melbourne to receive a literary award for one of my short stories, but it’s at the wrong time. But I will be there in spirit, and I am so happy to see more resources for RB families now in Australia.
If you are in the Melbourne area and want to support this event, email me and I’ll pass information on to you.
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