A mother with a young boy with bilateral retinoblastoma in Australia wrote to me asking for help.

Her son lost one eye to retinoblastoma, and now the tumour in his other eye is growing again. The doctors have recommended lens sparing radiotherapy treatment in London.

As you can imagine, the mere fact of the tumour becoming active is frightening enough. Add to that having to go to another country to have a treatment you know nothing about, and you get a pretty traumatised family.

If anyone can help out here by relaying your experience of this treatment, this mother would greatly appreciate it.

I’ve done some research for her on the treatment, and referred her to some organisations that might be able to help. But ultimately, if she can get first hand experience from another parent, it’d make the events ahead so much easier for her.

So please, pass on your experience here.