Archive for March, 2008


Subscription Feed Changing

As you might have noticed, I’ve changed my website name from Beyond the Red Door to Retinoblastoma Focus.

So for those of you who have subscribed to my blog, please resubscribe.

To make sure the new feed is active, leave doing this for about twenty-four hours from now.

I’m really keen to develop this site with a focus on retinoblastoma and stories of hope. I’m also going to include some medical information on retinoblastoma, as well as reliable and useful resources.

So have a look around and give me some feedback. What do you want from this site that I haven’t thought about? Drop me a few lines.

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Eye Cancer No Barrier for Isaac

Five-year-old Isaac started school this year at a mainstream primary school, despite having lost an eye to retinoblastoma.

His Mum contacted me after reading Tyler’s story

She describes Isaac as excelling already, “a bundle of fun” and “taking it all in his stride”.

I’d love to hear other parents’ stories. If your child has been diagnosed with retinoblastoma and has started mainstream school, tell us how he or she is going.

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More on Retinoblastoma and Determination: An adult survivor’s story

In the past, I’ve blogged about the possibility of a link between retinoblastoma and determination

Mary, an adult survivor, contacted me with her story after reading this blog. I’ve published it here with her permission. It’s a truly inspirational story.

My left eye was enucleated in 1951, when I was a year old.

Due to family finances, I had to work while attending a private high school, eventually paying all of the tuition myself. I was the first person in my family to graduate HS.

I eventually made it through college and grad school, commuted to work by motorcycle, raised my five kids, edited a literary magazine, reviewed music and theatre for a daily newspaper, and now work full time for a govt agency evaluating social service programs and designing and providing staff training to improve program’s outcomes.

I also teach part-time at a university.

I taught myself to play violin and piano, and have almost five years recovery from melanoma.

People say they admire what I’ve done with my life, which is when I think about the fact that I’ve had a pretty eventful 58 years.

My biggest problem resulting from RB is that I have a little trouble parallel parking.

People who like me say I’m determined, those who don’t call me pig-headed.

Actually, both are correct.

If RB had anything to do with my determination, it’s been a true blessing, the silver lining that overcame the cloud.

Mary’s story speaks for itself. Thanks for allowing me to share it with others, Mary.